by Terry Barr
“You’ve
lost too much weight! You look…GAUNT!”
The
anxiety in my mother’s voice shakes my confidence. It’s amazing
the power she exerts over me. How can one remark reduce me to that
emotionally stunted boy I thought I had shed years ago?
I
walk away from her, retreating to my bedroom bath. I shut the door
and breathe deeply. Then I face myself in the mirror, seeking the
new me, the slimmer me. The me that I like. But what I see instead
is a wasted face with hollow cheeks.
Is
there more wrong with me than I know? Despite the disease that I
have, that she knows I have, is it my weight that my mother is most
focused on? I turn away from the mirror, unable to resolve the
discrepancy of our perceived images.
I’m
on a 60 mg daily dosage of prednisone, a course of action I’ve
adopted reluctantly. I have kidney lesions that allow protein to
seep into my blood. No known cause or exact cure. Without the
steroid, I retain water in my legs and ankles and can feel the
heaviness rising up the length of my body when I don’t remember to
keep my legs propped up. If I wear regular socks, their tight
elasticity leaves my legs looking like geometric patterns etched into
a mashed potato canvas.
Over
a year ago, at the start of my journey into health-decline, I learned
that I’m a victim of the vast gluten-conspiracy saturating our
culture. My weight ballooned to an all-time high of 208 lbs. I had
been coasting before that at a reasonable 192—still overweight but
acceptable. But my rising weight slowed down my metabolism; I tired
easily when I walked up steps. My seventeen-year old daughter teased
me when I couldn’t catch my breath on a college walking tour.
Before the onset of any symptoms of disease, sweat used to pour off
me during my high impact workouts. But at 208, I barely glowed after
hitting the elliptical walker at interval-conditioning levels of nine
and ten.
My
family doctor originally diagnosed me as “hypothyroid” and put me
on my first long-term pill. Though some of my energy returned, the
foot-swelling persisted.
Next
came a statin, because my cholesterol skyrocketed to 400.
“Not
the sign we were looking for,” my doctor noted. “We have to get
this under control.”
Soon
blood pressure meds were added to combat the strain of my weight gain
on my heart.
Finally,
after weeks of testing they discovered the kidney problem.
In
a year, I went from someone who could honestly answer “Nothing,”
when asked what medications he’s on, to someone who now had to list
five, counting the prednisone, the vitamin D to help counteract the
side effects of possible loss of bone density, and the water pill to
help flush me out.
I
began drinking at least sixty-four ounces of water a day to help my
body flush out toxins and to stay hydrated given that I also consume
five cups of coffee a day. I stubbornly refused to give up that
blessed caffeine high—the ritual that makes me happy to get up
every morning and sees me through my mid-afternoon depression. I’ve
been in therapy for almost twenty years. But I know that my “low”
feelings started farther back, maybe as far back as I can remember,
since I seem to have always been fearful of something: leaving home;
getting in someone’s way. I had “accidents” in bed, in
kindergarten, at friends’ homes. As an adult, my depression
manifested itself in excessive sighing, irritability, and weight
gain. One pair of friends started calling me “Eeyore.” They
think I’m just naturally gloomy. Though I’ve felt it most of my
life, this feeling can’t be “natural.”
In
the early days of my journey through kidney disease, I’m afraid of
what lasting damage has already been done. Are dialysis,
transplants, complete failure in my future? I’m depressed, full of
seeping protein, and my pores have completely checked out of this
experience like they want nothing more to do with me. Like they’re
blaming me for all that I’ve done to my body—all that I’ve put
into it over the years. But am I the one blaming myself? Isn’t it
my voice I hear? Or is there another voice behind mine, speaking for
me as if I’m a wooden, controllable, marionette?
-------------
For
several months I resist my nephrologist’s recommendation of
prednisone, claiming as my wife does to fear the possible side
effects to my bones and my liver. My true concern, however, is the
potential weight gain. I follow my wife’s advice and consult a
naturopath, putting the western medical community on hold, rejecting
my mother’s fervent entreaties that I do as the “regular doctors”
say and ingest my steroids like a good boy.
I
take my naturopath’s recommendations, try her dietary supplements,
her digestive enzymes, her stem cell enhancements, hoping that they
will heal my inflamed kidneys.
I
also go off gluten, and my weight begins dropping dramatically, down
to a low of 175, something I haven’t weighed in thirty years. My
waistline—a thirty-six for decades, had expanded to thirty-eight
before the drugs. Now, I’m a thirty-five. I feel good, happy. I
actually like my body—like looking at myself stripped down in the
bathroom mirror. I have an attractive physique, words I never
thought I’d say about myself. This is the person I thought I could
be. Looking at myself feels strange and new, but as I look, I wonder
if I’m finally developing that ego I’ve seen in others. How long
can I admire myself before feeling uncomfortable? I turn away,
feeling ashamed of feeling good.
I
check in with my naturopath every month. She feels confident that
“we’re” on the right track. But my swelling persists; the
amount of protein I’m leaking continues to climb.
My
kidneys are not getting better, though, as my check-ups with the
nephrologist clearly show. So I have to face the western model. I
put my organs in their hands—a heavy decision that I swallow with
as much grace as I can.
At
first, the prednisone gives me more energy than I’ve felt since
adolescence. I move furniture willingly, create prose that seems
inspired beyond my capabilities. I don’t tire, arise at three am,
brew a big pot of coffee and then sit at my computer submitting
essays to various literary magazines.
Exhausted
by nine in the morning, I power nap, and stay awake until eleven at
night. My life is rich, full, and clearly quite manic.
“That’s
prednisone,” my nephrologist laughs. “Sadly, the energy won’t
last.”
Christmas
comes, and my mother arrives with it. She focuses her disapproving
eyes on me, proclaiming for all to hear:
“Doesn’t
he look gaunt!”
And then to me, “You just don’t look healthy.”
Her
words and tone trump my doctors. Her conviction sounds final, as if
she and she alone can see inside me with her very own x-ray eyes.
I
try not to let her words sink into me, but when my beloved cat Alice
dies that week, I spiral down a long and bottomless tunnel. I’m
afraid, alone, weightless in this free-fall. I’m losing loved ones,
love itself. Is the only way to stop this fall—to hold onto myself
and love again--dependent on obeying my mother?
I
listened to her all my life. I tried to follow her advice in most
things, and she’s been right about so much: that I should use only
certain essential food products and brands, that I needed to venture
out in the world to have “adventures.”
But
she’s also been wrong many, many times. While she makes defiant and
definitive pronouncements on everything, her world has always been
quite limited. She has only a high school education. I’ve never
held this against her. But then, I’ve never examined what this
means to either of us very closely.
If
I continue to let her words sink into me, where will they stick? To
my belly or love handles?
To
my colon, kidneys, or liver?
In
my heart? My soul?
These
words might live forever inside me and mark me as the person she
wants me to be, the one she can have power over. I was the only one
she could
have power over since my Dad was overpowered by his own mother, and
since my brother quit listening long ago. She tried to give him
advice. But whatever she ordered, he did the opposite. And while his
decisions sometimes backfired, at least he is not fat. He works out
daily, watches his calorie intake. But he, too, has thyroid issues
and a high-strung nervous system.
I
realize that he’ll have his own story to tell one day.
But
in my story, I believe that my mother’s words are taking me back to
an image of myself that I hate. She’s telling me that Gaunt equals
Unhealthy, and therefore Fat equals Healthy. A five foot, eleven-inch
man should be able to weigh 175 and look healthy. Can he at 192 or
208?
I
don’t know how healthy I am, but I do know that I’m not at peace
with myself. I’ve always been the image that others say I am. I’ve
never had the courage or will to look in the mirror and believe that
I am the only one with the power to recognize my potential, make my
own decisions, and shed all the vestiges of my past image.
The
image that weighed me down and damaged me.
Is
my mother’s desire more for me to gain back my lost weight than it
is for my kidneys to improve? Is it only the fat me that she approves
of? That she loves? Does she believe that when I ingest her food that
I am ingesting her love?
For
most of my childhood, she overfed me. She made me fat and kept me
that way. It was a controlling love, and it reduced me to a weighted
object that couldn’t hold anything down or back.
Like
my depression.
-------------
As
a child, I had to shop in the “Husky” section of clothing stores.
The
kid down the street, an Eagle Scout, used to call me “Butterbean”
when I’d come over to play ball with his little brother.
My
family has baby pictures of me standing naked beside the bathtub, the
rolls of fat on my arms, legs, and backside, making me look like a
vanilla-flavored tootsie-roll child.
When
I was a baby screaming with colic, they’d stick a milk bottle in my
mouth.
“It
was the only way to keep you quiet,” my mother says.
I
know that these times came with a mixture of joy and pain. She almost
died having me and was so sick afterward that she couldn’t breast
feed. And then I was always crying. I upset the balance of home. Both
my parents, and my mother’s mother who lived with them, carried a
high-strung anxiety. They worried about my health, needed reassurance
that all was orderly and well, and apparently chose the milk bottle
as their weapon to ensure their sense of well-being. Despite the
colic, they finally found a formula that worked: goat’s milk, and
I’m told that I “just couldn’t get enough.”
And
so my life-pattern began. Food: a quieting remedy, an order-restorer.
A substitute for love.
As
I grew, my mother prepared balanced meals according to the times of
my youth. Naturally, as a Southern cook, she fried many main
dishes—chicken, country steak, pork chops--and even most vegetables
including eggplant. Each meal had at least one starch: potatoes,
rice, corn, and always white bread. I had sugar in vast quantities,
too. In my iced tea; in all the Cokes I consumed between meals; in
the prepared jellies, sauces, peanut butter treats.
And
the cookies. Though I was limited to two cookies at any given
time--Oreos, oatmeal-raisin, Chips Ahoy which I loved dunking in
Coke--they were so accessible! Right in the first-level kitchen
cabinet, they made sneaking a third or fourth no hardship at all.
There
were white flour confections every weekend: lemon ice box pie, pecan
pie, apple cake, peach cobbler, and my personal favorite, pound cake,
often with whipped cream or maybe even a scoop of homemade vanilla
ice cream.
Pound
Cake: pound of butter, flour, sugar. What’s not to love?
Often
after Sunday lunches or full weeknight suppers, when I’d be lying
virtually comatose on the den couch watching a football game or
situation comedy, I’d hear my parents conferring:
“Why
is he so lazy? He needs to get off that couch and do something! Go
outside and be active!”
Sometimes
I would, and maybe my doing so absolved them for a time of their
worries that I wasn’t healthy or normal. I couldn’t see the
contradiction in their behavior toward me, though. When I cleaned my
plate my mother knew that she had succeeded again in nourishing me,
in providing what she couldn’t when I was an infant. Maybe my
eating did grant her some peace. Still, five hours later, she needed
the same reassurance, the vindication and control, all over again.
When I gained even more weight and failed to actively “play” it
off, I risked their disapproval, their worries and blame. And so
whatever they “fed” me, I absorbed.
Feeling
the burden of this powerful weight, and given that we kept no scale
at home, I began weighing myself on Sunday evenings on the bathroom
scales at my grandmother’s apartment.
Trying
to be helpful, my grandmother advised:
“You
have to allow for your clothes and shoes. They add five pounds at
least.”
“Whew,”
I’d say, “so I really still weigh just 89 pounds!”
What
a game that was! I consistently busted through my clothes. I’d hear
about all the extra shopping bills caused by my weight, and I knew
that my parents’ arguments were my fault.
I
couldn’t find the right path. While their words directed me in
absolutes—no more cookies!; clean your plate!; want seconds?—they
failed to give me a workable solution, a plan of reasonable action.
They abandoned me to my conflicting desires of pleasing them,
indulging myself. I never stood a chance of even knowing what was
best for me, what I wanted for me. Or how to find a me that was all
my own.
It
didn’t help, of course, that I loved standing in the kitchen while
my mother cooked—loved helping her grate cheese, cut out biscuit
dough, shave carrots. I’d hand her pots, cans, openers. She’d let
me sample her latest concoctions, lick the batter from the cake
spoon, or from the mashed potatoes stuck to the Mixmaster blades.
Being
in the warm kitchen with her felt like a form of heaven to me. Safe.
Cared for.
Nourished.
Until
one spring evening.
I’m
standing by her side, waiting to help. I don’t catch that something
is amiss—that something has gone awry in this cozy world of
comfort.
“Can
I have a piece of Velveeta, Momma?”
I’m
seven years old. My desire for cheese, for the tasty processed blend
of saturated goodness, blinds me to my mother’s mood. She slams
down her knife, turns on me with eyes dark and blazing:
“Get
away from me you fat little pig!”
I
can’t comprehend what has happened.
What
I’ve done, and now, what I am.
My
grandmother hears everything and follows me out of the room:
“Your
mother didn’t mean that darlin’. She’s just tired. I know she’s
sorry.”
My
mother doesn’t follow me though. She doesn’t apologize then or
later on.
When
she calls me a pig, I weigh over eighty pounds. I know I’m fat, and
I’m used to my friends teasing me about it.
I
know I’m not a pig. But for that day and many after, I feel like
one.
Fifty
years later, I still see myself as a pig. I don’t know what to do
about it, how to shake its hold.
-------------
When
I’m eight, a new girl enters our community: Karen Fenstemacher. She
isn’t hard to spot or forget because she’s very fat, weighing at
least 140 pounds.
Though
at almost 90 pounds I’m a “husky,” a “Butterbean,” and a “
little pig,” she is a “Fatso.”
My
grandmother tells stories about Karen and the weekly fellowship youth
suppers at church on Sunday nights. I don’t attend those suppers
because I’m stuffing my face full of kosher bologna/salami
sandwiches slathered with cream cheese at my other grandmother’s
apartment. To complement the sandwich, I eat Golden Flake Barbecue
chips, a whole kosher pickle, and for dessert, a cinnamon roll and/or
an individual cup of Barber’s ice cream with nuts, chocolate sauce,
and cherry topping. Of course, a King-size Coke washes it all down.
Does
anyone try to contain me? Did they want to? Is that even possible?
Karen,
however, is “contained”:
“Her
mother told me not to let her have more than one helping of whatever
we served,” my grandmother continues. “One hot dog or plate of
spaghetti. But the poor child would eat hers so fast that she’d be
back in the kitchen before we finished serving the other children.
She’d beg for more, and it just broke my heart to say no.”
“Do
you ever let her have any more?”
“No,
I promised her mother! Oh, the poor thing would cry…but she’s so
fat!”
I
pity Karen, but only momentarily, for then my grandmother adds with a
wink:
“And
you know what else? She always asks about you, where you are! I think
she likes you!”
So
Fatso likes Butterbean! My grandmother isn’t the only one who
thinks so either. Everyone teases me:
“Isn’t
Karen your girlfriend? Don’t you want her to be?”
The
truth is that Karen is sweet and smart. Yet I don’t want a
girlfriend in third grade.
No
guy I know does.
Especially
not a fat one.
What
if she weighed half of what she does? Or even three-quarters? Would I
take a chance then?
But
then, if she were skinny, “normal,” why would she like me?
------------------
As
I work my way through adolescence, I start “leaning out.” My hair
grows past my shoulders; I talk my mother into buying me one of those
skinny-ribbed, zip-up thin cotton shirts. I pretend that my stomach
doesn’t poke out from its confined space—that I’m not a victim
of “Dunlop’s disease,” an affliction that my best friend’s
daddy explains to me as “when your stomach dun-lopped over your
belt.”
I
suck mine in, hold it tight.
And
though she buys the shirt for me, my mother can’t hold back her
assessment:
“It
won’t fit you right. You just don’t have the physique for that
shirt!”
It’s
too hippie-ish for her taste anyway. She’d prefer me in a blue
Oxford button-down, or a half-sleeve white linen dress shirt.
Something classy; something “Southern.” Something that will
contour to my flabby torso.
Of
course, she serves these remarks with a large portion of fried
chicken, brown gravy, homemade rolls, and mashed potatoes. Of course,
I eat it all, with seconds on the chicken.
Of
course she’s right about the shirt, as the sad pictures from my
life then will forever attest.
What
is in my stomach? What gets stuck there? It will be decades before I
am enlightened about the body and its spiritual ties. Before I
remember that my default position whenever I felt fear, blame, or
humiliation was to cower in my room, and when asked “What’s the
matter with you,” to whimper, “My stomach hurts.”
I
realize now that it has been hurting all my life. That the food I put
into it doesn’t satisfy. That my stomach’s shape focuses all my
attention. That my stomach has never been mine anyway. No doctor or
nurse or daddy detached it. Detached us. And while I have been
sustained by the food my mother gives me, she’s never fed me the
pure emotion of love. No wonder that for all the years I lived at
home, I just couldn’t get full no matter how much I ate.
Casting
aside my skinny-ribbed shirt forever, I adopt a flannel shirt, which
I wear for all occasions, along with ragged jeans and thick-soled
boots. I’m living my Neil Young hippie dream, certain that my
wardrobe and sense of style will compensate for any vestige of
weighted shame.
I
hold onto a 34-inch waist throughout high school, but during my first
year of college, I grow into a 36. That year, the constant cafeteria
food abuses me, as do the late night jaunts to Pizza Hut and IHOP.
After the blandness of college food, when I go home I relish
vegetables that I’ve never even considered smelling before: collard
greens, sweet potatoes, squash, field peas. My jeans are still bell
bottoms, so the pounds of flesh I’m adding aren’t so noticeable
at first. But when straight legs come back in style, I can no longer
hide my newly-padded identity.
I
keep covering my body, hiding it. I don’t know who I am and refuse
to look for or at myself, as if I’m scared of what I might find or
see. What I might discover about what’s happened to me.
So
I begin skipping breakfast, walking everywhere. I refuse late-night
runs for pizza or barbecued chicken sandwiches. Soon, I’m able to
fit a 34-inch jean again, just barely. When I look at myself in the
mirror, I know I’m a fake-34. I know the degree to which I suck in
my stomach, and when I crave humiliation, I let that stomach sag for
all it’s worth.
And
then I pinch the extra inches until I wear red blotches below my
waistline.
My
stomach-suck carries me safely through college. I graduate
academically, but my body lags far behind my mind. The following
fall, my parents move me to my grad school life where I know no one.
Before they leave me behind in a sketchy studio apartment, they take
me to A&P, my mother’s grocery store of choice. She selects
food items that I don’t begin to know how to cook, stocking my
tiny, non-frost-free refrigerator with meatloaf ingredients, chuck
roasts, breads, and Stouffer’s lasagna. I see how full my poor
refrigerator is—how its whirring gears are working too hard for its
age and health. I also see that soon, the straining stuffed appliance
will be me.
----------
Being
far away from home actually proves good for me. My new campus is
nestled in the foothills; my Teaching Assistant duties are so
far-spaced that I get much of the exercise I need just rambling from
class to class in the ten minutes I’m allotted. My food budget
straps me, disciplines me; I avoid pizza joints and delis. My clothes
hang more comfortably, and my dating life soars.
But
I’m still self-conscious about romantic relationships. I believe
girls still see me as fat, even when, after a few weeks of dating,
one girl insists, as we’re sitting at a bistro sipping red wine,
that I unclasp the third button down on my white linen shirt.
“I
love looking at your chest!”
Is
this really me?
Though
I obey her, I reject her soon after. I don’t believe any positive
physical attention paid to me can be genuine—can come without some
buried weight. I have no history for this positive reflection. And if
I believe it, where will that leave the years of food and
nourishment? The years I ingested love, supposedly, through my
mother’s cooking?
Then
I meet someone who seems very ready for my challenge, and maybe my
own instincts, deep within my body, are ready for her too. She is
cheerful, optimistic, always happy. Fearless. She’s on her own,
too, far away from home and family. A few months after we start
dating, she gives me a trial membership to an exercise club. I try
that workout world a few times. The exercise itself feels good, but
after my trial period ends, I balk at committing to a three-year
membership and paying forty dollars a month to a corporation that
wants me to believe that they believe in me.
I
am not a fitness whore.
“But
it might be good for you,” my girlfriend says. “Being active and
healthy, you know?”
Her
metabolism is the exact opposite of mine. She’s a doer: loves
kayaking, hiking, rock climbing, playing tennis and volleyball. Being
active will bring us closer, she believes.
In
the several weeks I take to decide this issue, I grow shapeless
again. And heavy. Heavy, heavy me. I could walk out on this
relationship. I could conform to past images and reflections. But I
don’t. I choose not to. Her voice, her optimism and interest in
me—an interest with no heavy baggage attached—beckon me.
So
I join the club. I walk on ellipticals for forty minutes. I use
Nautilus weights, and take aerobics classes several times a week. I
begin feeling…good, hopeful, about my weight, about my girlfriend,
about our future. Has anyone ever shown this much concern about me?
About the picture of a healthy me? A me who can be loved for himself
and not as compensation for or absolution from guilt?
A
few months later, we get married. We are in love, and I think I’ve
overcome my insecurities, my feelings of shame about all that I used
to weigh.
One
night, waiting on her to come home, I violate my own principles. I
see her journal lying open on our bedside table. I move closer. I see
my name, and then I see myself as she saw me “back then.”
I
don’t remember anything else that she wrote, just my name and the
word “FAT” next to it. It hurts to know the truth, even when I
feel past it all. I say nothing about my transgression and vow to
stay fit and trim.
I
continue working out faithfully. I shape, sculpt, and trim my body,
but however hard I work, I can’t fit into the European-styled
briefs she buys me. She accepts what I can’t change, doesn’t
criticize me when indulge in frozen yogurt. She knows I’m working
on me, and she encourages me, always.
I
think about her journal, that word, but I see how she looks at me
now. I believe in our growing intimacy, and I refuse to let one word
control me: control what I choose to believe about me.
But
naturally, our world isn’t always a family menu just for two.
In
the early years of our marriage, for health and ethical reasons, my
wife and I give up all red meat. This in itself proves a challenge
for my mother to digest.
When
my parents are visiting, my mother insists on cooking while we’re
at work. I come home one evening to a very concerned wife, a
not-unfamiliar aroma, and a beaming mother:
“They
had pork tenderloin on sale at the Fresh Market today. There’s
nothing like a good pork tenderloin!!!”
My
wife is Iranian, though she wasn’t raised Moslem. Still, most
Iranians don’t eat pork no matter who they are or what God they
believe in.
So
when we sit down to dinner, my wife serves herself a generous portion
of potatoes, stewed vegetables, and bread. She then looks right at
my mother and says,
“Jo
Ann, I just can’t eat that meat. I know you worked hard and meant
well, but I can’t eat pork.”
My
mother sinks a little then. And then she looks at me.
“Uh,
I really don’t think I can eat it either,” I say.
“Well,
just don’t eat it then. I guess I can’t do anything right!”
Later,
my wife suggests that we all go out for ice cream. There’s a
Swensons in town, and hoping this will lift everyone’s spirits, she
and I lead the way out.
Seated
in the festive Swenson’s air, we pour over the six-page dessert
menu. My mother finds a tempting item and points it out to me:
“You
ought to get that! Why not?”
I
look at the picture of this “dessert.” For a moment, I waver.
It’s
the most enormous ice cream sundae I’ve ever seen. They call it
“The Kitchen Sink.” Would eight scoops of vanilla, strawberry,
and chocolate ice cream smothered in whipped cream, chocolate,
caramel, and butterscotch syrup, nuts, cherries, and God knows what
other forms of sugar, be enough to compensate my mother for a
neglected pork dinner?
I
look at my wife and then at our waitress.
“Just
a scoop of vanilla with pecans, please.”
---------------
I
don’t know what lies ahead for my health condition. I am responding
to prednisone, which has reduced my protein seepage dramatically.
I
have also gained ten pounds in the past week.
I
face myself again in the bathroom mirror. My stomach is sagging, all
added weight accumulating there. For a moment, that old word returns.
For a moment I feel it. Yet, I refuse to say it. I refuse to be it.
For there are new words, too: words like “responding,” and
“healing kidneys.”
Words
like “You’re good, healthy,” and “I love you.”
I
keep looking. And then I see what I’ve been searching for, what
this journey has been for. My mind relaxes. I smile. I am healthy.
The voice I hear is my own. For the first time, I feel like I’m
“me.”
Biography:
Terry
Barr is a regular contributor to the webzine, culturemass.com,
where he writes about pop music and memory. His essays have appeared
in Steel Toe Review, Red Fez, The Montreal Review, The Museum of
Americana, and Squalorly. He lives in Greenville, South Carolina,
with his wife and two daughters.
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